We are celebrating one year of the public launch of EUmetriosis, a five-year European research project working to transform how endometriosis is understood, diagnosed and managed.
As we reflect, we are incredibly proud of the progress of the research project. Since the project began, we have laid strong foundations through collaboration between researchers, clinicians, patient organisations and those with lived experience of endometriosis. With patient and public involvement at the heart of the project, this ensures that the research remains focused on the needs and priorities of those it aims to benefit.
In this anniversary blog, we look back at some of our key milestones of the research projects so far and hear from the EUmetriosis research teams as they share their achievements and reflections:
ENDO1000 – UK Team
“We are incredibly proud of the progress made over the past year in partnership with our Croatian colleagues to establish the EUmetriosis/ENDO1000 project across the UK and Croatia. The launch of our app and the strong response – now over 2,500 registrations of interest – reflects a clear appetite to drive change in endometriosis research. As we prepare to extend the project into Ireland, we are building momentum towards creating the world’s largest longitudinal cohort bioresource in endometriosis. Our ambition is simple but powerful: to generate the evidence needed to transform understanding, diagnosis, and care for those living with this condition.” – Professor Andrew Horne, University of Edinburgh
ENDO1000 – Croatia Team
“Every participant represents hope. Every dataset brings us closer to answers. Every year strengthens our impact. As we celebrate the first anniversary of the public launch of EUmetriosis, we’re proud that the Croatian team has recruited 205 participants across two study phases. Thank you for helping shape the future of endometriosis research.”
IRCCS Fondazione Ca’ Granda Policlinico
“In its first year, EUmetriosis has successfully moved from concept to action. Seeing patient recruitment begin sets an important milestone toward improving the care of women with endometriosis through evidence-based, patient-centered approaches. Regardless of the study outcomes, EUmetriosis already represents an important achievement by placing endometriosis at the centre of scientific, clinical and public attention.
Building a growing European network of researchers, healthcare professionals, and patient organizations committed to improving the lives of women with endometriosis. By working together, we are not only advancing research but also ensuring that scientific knowledge is translated into accessible information and practical support for women living with endometriosis.
The publication of the DANTE trial protocol represents an important milestone for EUmetriosis, making the study design and methodology openly available to the international scientific community. Together with the initiation of participant recruitment, it marks a significant step towards advancing fertility care by generating robust evidence on the potential role of nutrition in supporting women with endometriosis undergoing fertility treatment.”
Radboud University Medical Center
“We are very pleased with the strong interest in participating in our study on the effectiveness of lifestyle interventions in endometriosis: we have now already reached 65% of our recruitment target.”
UCLouvain
“What was once considered biological waste may hold the biomarkers of tomorrow. Exploring menstrual effluent–derived exosomes may bring us one step closer to earlier, less invasive diagnosis and better care for endometriosis.”
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